Don’t Sell My DNA Act

Don’t Sell My DNA Act This bill establishes protections for genetic information (e.g., information about an individual's genetic tests) in bankruptcy, particularly genetic information held by companies. In bankruptcies, a trustee is appointed to arrange for the use, sale, or lease of property of the debtor’s estate. The bill provides that if the property of the estate includes genetic information, all affected persons—including those not involved in the bankruptcy—must consent in writing to the use, sale, or lease of the genetic information after the commencement of the bankruptcy case. The trustee or debtor in a Chapter 11 (reorganization) bankruptcy must delete such genetic information if it is not disposed of in accordance with this bill.

Source: Congressional Research Service (CRS).